Senin, 02 April 2012

Devika Story [English]


THANKS TO GOD

 It's very encouraging news that our family, after 12 years we waited ...
God grant our prayers, especially prayers Widi.
God let me get pregnant.
Thanks to our wonderful wait has finally come ...
God entrusted to us we had a baby and parenting students ...
Feeling unhappy, confused, jumbled into one waiting for him in the world


        STRUGGLE
Is not an easy matter to face this pregnancy ...
During the pregnancy I have experienced several bed rest ...
Keep it out of the hospital ...
Many things must be passed as containing our beloved daughter ...
Makes me especially .... Feel so guilty ....


A HAPPY DAY
Until the time ... The awaited day arrived .... Sunday morning, May 22, 2011 at 00:12 while I was pregnant at the age of 38 weeks ...
Our beautiful daughter was born Devika Mohana Pangestu by caesarean section weighing 1.72 kg and length 38 cm ....
He was so small ... with a cry that was so weak ...
Doctors do not let me see it ... I just heard the sound passing Aaron doctor said, "His condition is very bad".


A PAPA OBSTINACY
At critical moments in which Vika was in a coma, her father continues to be on his side to give spirit to our little baby ....
"Let the spirit of love ... You must be able to fight kid "
Her father continued to accompany our daughter to fight ...
Installed to assist breathing oxygen ....


Devika STRUGGLE BEGINS
Sunday afternoon the doctor came into the room Gracia ... He said, "Vika very bad condition" ...
Oh my God ... Tore my feelings as a mother to hear our daughter so convicted ....
 I want to see it .... But I have not been allowed to get up ...
I can only see through the recorded video Vika her daddy ....
While the prayer support of bystanders getting flooded
                                                                                   

     MONDAY, 23 MEI 2011
At 10 am the most thrilling moments ... When can I come to the nursery ...
Oh my God ... He was so small ... Cried so slowly ...
I hold her hand and I do not hold back my tears ...
Oxygen, tubes and wires attached to her small ...
I do not know what to say ... I really feel what he feels our beloved daughter ...Excruciating pain ....
One thing that makes my spirit arise .. when I see it I can feel the spirit that says
"Mama ... I want to live ...."


TUESDAY, 24 MEI 2011
Ophthalmologists and ENT doctor examined considering the very bad condition, and doctors worried about going blind in the eyes of Vika ...
We continue to hope that everything will be quickly completed and Vika fine ...


WEDNESDAY, 25 MEI 2011
When the weight because I had to leave Vika in hospital while I can go home ...
A spirit that I am calm ... I had to struggle to breastfeed for the Vika ...
Leave Vika with my tears in the hospital and let the angel of the Lord with her ...


THURSDAY, 26 MEI 2011
Thursday morning, first milk 10 drops out of my transfer to the hospital with the help of Grace ... Because I was not able to rise to the top of the car ...
At that Vika started breast-fed 2 cc ... And a positive response ...
While to survive ... Vika infused with vitamins and proteins ...
Every morning and evening ... accompanied by Uti, Widi, and father Terry, we visited Vika
While DOA unbroken end of the people who love to accompany every step of our family ...
Days of continuous running ....


MONDAY, 31 MEI 2011
In the morning, I, Widi, Uti, and Uti Tutik deliver milk to Vika ...
Without a compromise before the hospital took the initiative to move our daughter because of his heart shall echo and RS in HK do not have the tools ....
We are busy calling hospitals to be designated the RS. We hope and RS Hermina. All rejected because there is no room NICU is empty ...
I told you ... Let the Father shows where Vika had to move ...
 Finally we call Siloam Hospitals ... Thank God there for our convenience ...
There is an empty room ...

Finally, after we take care of the administration ... We brought our daughter Vika by ambulance to Siloam Hospitals
Oh my God ... It was not an easy task for us to bring him ..
Road conditions are very bad at 3 pm ... In fact we can not penetrate the streets ...
I open the window of an ambulance ... I beg them to remove the hand out of the way ...
Vika in the ambulance crying weakly
Thank God we finally came to Siloam Hospitals


SECOND CRITICAL PERIOD
That afternoon Vika examined intensively by a doctor ... We were asked to wait in the waiting room prepared for NICU patients ...
I can only weep and pray ... At that time I was accompanied by a loved one ... Uti ... Rev. and Mrs. Amin, Grace, Maya ...
And in the middle of the night ... the night is very critical ... Vika ventilator fitted by a doctor Season ... Last aids to help him stay alive ... Her weight dropped to 1.6 kg
Help the engine breath because full saturation Vika has gone down ... Only the extraordinary enthusiasm kept me wanted to fight with him ....
  

CRITICAL PERIOD THROUGH
After 4 days in the hospital waiting for the sleeping mats ... Vika finally expressed through the critical ...
We can go home and free to visit anytime ...
Every day we went to visit ... I waited in the room until hours and hours ... Sing to her ....Pray for him ... While continuing to hope when it's over ...
While the prayers and concern of friends and sisters wherever they are continue to strengthen our ...
She even keeps a journal for the development Utami Vika

Answers to prayer we feel like we need to find guidance every day ... Every day we ask "What should we do today the Lord"
And every day there is encouraging news we ....
Oxygen saturation rose ... Reduced dependence on the machine ... Vika even have started to breathe its own .... Praise the Lord
Vika is also getting a lot of drinking ... I'm more excited to provide breast milk even if not directly (through the sonde)
Of 2 cc, 5 cc, 10 cc, 16 cc, 18 cc, 20 cc, 25 cc, 30 cc, 33 cc, 35 cc.
Praise the Lord .... Vika getting fatter ... Weight is increasing ... He was more beautiful ....


Deadlock
Until finally the doctor said they found a dead end.
Vika was told that they can not escape from the ventilator
May 31, 2011 night, Rubiana physicians, cardiologists RSCM brought in to perform echocardiography.
Oh my God ... Vika leaky heart ... Vika was very difficult to lead off the engine.
PDA and VSD are two experienced cardiac leak Vika ...
Rubiana doctors still calm we can close that leak it themselves ...


ROADS STILL CLOSED
June 6, 2011 carried out a second echocardiography ...
We really hope a miracle of God happens ...
But it turns out ... Vika heart still leaking ...
God knows best ... We want to be led Father ...
Oh my God ... How hard the struggle Vika ...
"The only way is heart surgery," the verdict doctors and physicians Naomi Rubi ...
But it's not that easy to do ...
 She weighed less than 2 kg while the weight of 2.5 kg is required to be operating
We continue to hope ...


NEGOTIATION
June 11, 2011 proposed by the physician Rubiana Vika Waluyo Abdi was taken to hospital in Jakarta for the heart scan ...
June 13, 2011 Vika prepared Abdi Waluyo taken to hospital ... Vika must dibagging because there is no ventilator in the ambulance.
We have prayed together and Grace Pak Amin surrendered what would happen ...
I whispered to him, "Brother ... Strong ya brother ... But the sister do not paksain yourself ... If it is not strong brother ... brother looking for the Lord Jesus. "
My face to his eyes .... He understands ....

Thank God it did not do ... God does not allow Vika Waluyo Abdi brought to the second last moment when Vika will be transported to the ambulance


Vika BRINGS HOME PLAN
Answer to prayer is still unclear ...
Because of costs already exceeded over a hundred million ... We plan to bring Vika HOME ... Whatever happens ... Our children have to go home ...
Doctors, nurses NICU, all against our decision ...
"Do not bring home Vika ... Let Vika getting bigger and ready for surgery ... "
June 18, 2011 Vika doctor Rubiana echo re ...
The heart is still leaking
My God .... How long will this end .... I was beginning to lose hope ...


DISCOURSE OPERATIONS
Days passed and unexpectedly Vika growing larger.
It weighs 2.2 kg
Praise The Lord!
Vika inoperable!
Rubi doctor ordered for the Vika place in perinatologi RSCM
Praise God all pass, because it is very difficult to get a place in the RSCM


Vika BRING TO RSCM
June 28, 2011 early morning departure time for daddy to Batam .... Vika audit brought to RSCM ..
I was with a doctor and two nurses are in an ambulance accompanied Vika .. While Uti, Pastor, Widi, and Aan follow us ...
Vika just rely on bagging .... Without ventilator
Between ON and OFF trip ...
God allows me to face it alone without a husband by my side ...

Arriving at the RSCM Vika condition declined rapidly ...
Lippo Cikarang trip - RSCM and miss going to make us wait in front of the RSCM for more than an hour to just rely on bagging
Vika Drop ....
Finally ... Ventilator fitted with full force ...
Vika full breathing with a machine ...
My God ....
Give strength to the Vika ...


  Vika SUFFERING SUSPECTED trisomy 18
And on that day, doctors began to realize there are different from Vika ...
"The possibility of Vika had Trisomy 18," said the doctor and the doctor Fransisisca Rubi ... "Vika have to test the chromosomes ...
If positive ... we can not do anything because progressnya is not good ... When the negative .. Dr. Jusuf Rachmat, SpBKV, MARS will Vika heart surgery the day Friday, July 1, 2011 ... "
I still hope that the doctor had said WRONG ...


FEELING OF A MOTHER
In the evening ....
Oh my God ... I cried as loud as my voice when I see photographs of some babies with Edward's syndrome on the Internet exactly the same physical characteristics Vika ...
Hand with overlapping fingers, cardiac leak, and low weight.
Oh my God ... Vika seems similar to Elliot ... Edward Syndrome sufferers are only 90 days old ...
Vika special ... Vika one in 5000 babies born with Edward syndrome (trisomy 18)


Vika POSITIVE trisomy 18
June 29, 2011 Vika Chromosome test ...
July 1, 2011 at 12.00 noon test results come out ...
Vika positive Trisomy 18
Operating plan was canceled ...
I was crying uncontrollably ...
"I have to take Vika where more doctors ... "
Oh my God ... What should I do? Rubi doctor gave me a hug .... Vika inoperable ... Can not do anything to Vika ...
While we struggle ... Prayer strengthens friend outside our room ....


Vika BRINGS HOME
We struggled for guidance .... God what we should do ...
And the answer ... HOME ... Bring it HOME
Options are very heavy ... If we survive ... Vika lungs will not be strong because more than 20 days of ventilator use Vika ...
Not an easy thing for us ... to see Vika who continue to struggle ... And we should stop fighting with the tools off his breath ...
Oh my God ... Forgive us ... We like to kill our own children ... I'm sorry mama Vika ...


Vika UNTIL THE END OF THE SPIRIT
With the accompaniment of prayers ... Vika mewinning doctor ...
Vika fighting really strong ... He would not give up ...
Vika ... When Vika is looking for strong ... yes dear Lord Jesus ...
We continue to whisper the sentence to Vika ...
I hold her hand ... and he seemed to speak "Yes mommy ..."
Again Vika understand ...
Sweat was pouring all over his body ...


Carrying Vika
Finally ... with the rest of the power we have ... we carry Vika home ...
This is my first time carrying Vika ...
Oh God ... after 40 days ... Finally I can hold ... My pretty princess ....
'"We love ya home ... Vika have never seen a house ... We're back ...... "
My husband and I took turns hugging and kissing Vika ... While we continue to play hymns on the car ....


                                                        RIP Devika Mohana PANGESTU
In car ... Her breathing increasingly difficult ...
And right on Boy Scout Road ... July 1, 2011 ... Vika 19:10 hours last breath ...
Devika Mohana Pangestu goodbye ...
Beloved daughter goodbye ...
Mama was proud to have Vika ...
Children who are very tough fight for our happiness ...


MY little HEROES
One thing ... It was hard for us to explain the concept of the death of his brother ...
But without us guessing ... Widi said ... Widi proud of ma ... Because Vika, 4999 another baby daddy mama happy together ... Vika my hero ....
Vika ... I'm sure someday we will meet ...
Mama, Papa, Mas Widi, Uti, finish the task we had in the world ....
Wait ... we love ya We will always love you my little angel ... A blessed little girl ...


CHOOSE TRUST
Life choices in our hands ...
But God wants us to seek His wisdom ...
Because if the scope of the plan, there is nothing good or bad ...
There is only the best ...
As we sank into the valley of the shadow of death, choose to believe
Because there must be a rainbow after the rain when we rely on God in our lives ...
"God did not promise the sky is always blue,
flowers scattered along the road of our life,
God did not promise sun without rain,
joy without sorrow
But God has promised ...
The need for the day progresses,
Stop the work,
light on the road,
Grace that is in trouble,
help from above, compassion who never fails,
love that never goes out "
Annie Johnson Flint
Devika Mohana angestu"

22 May - 1 June 2011

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